Guest Bloggers

Just Imagine. . . Trying to Explain Daily Life to a Healthy Person

Can you imagine never being able to eat again? Hooking up to IV nutrition or tube feedings every day in order to live? Carrying your nutrition on your back all day or being attached to a pole all night? Or, simply having to “survive” on chicken broth, Ensure, and small bites of food all day long? And in spite of that, still dealing with... [Read more of this review]

Talking To Your Spouse About Your Illness: How Much is Too Much?

by Lisa Copen “It’s as if there are thumb tacks in our bed,” I lament to my husband as he crawls in on the other side of our bed. “Logically I know nothing is there, but my body would argue otherwise.” “I’m sorry,” he says as sympathetically as he can, but what else can he do? “I feel a little nauseous... [Read more of this review]

The Battle with The Mirror When Living with an Invisible Illness Even I Cannot “See”

By: Jamee Tyree Miller You know there are times where the inside just does not match the outside. If you have ever watch What Not to Wear (I love me some Stacy & Clinton), on just about every episode you hear them say that they want the beauty on the outside to match the beauty on the inside. So they work and change and fluff the participant until... [Read more of this review]

“I Just Want To Help!” When People Comment On Your Illness

by Lisa Copen We may find ourselves shocked to find out just how much we are the on the prayers of loved ones who are a part of our inner circle. They may actually be concerned about us more than we realize in regard to our health. So when they say hurtful things we are left wondering about their intent. We can do our best to rise above the hurt feelings... [Read more of this review]

People With Invisible Illnesses – Look Out! We Are Everywhere

By Kerri Sweeris Invisible. Shrouded. Hidden. Veiled. Unseeable. Sometimes I wish I could wear my illness. Yes, I have a trach, but that could be from cancer, which most people assume is the case. Sometimes I wear an eye patch because of the double vision, but there again… could be an injury. When I go out of the house, unless I am going to the... [Read more of this review]

Exercising and Acknowledging Your Limitations When Living with Daily Chronic Pain

By Pam I am currently reading the book Boundaries by Dr. Henry Cloud & Dr. John Townsend. I’m not really far into it yet, but I am discovering all the areas of my life that could be different by knowing my limits in every aspect of daily life. Unfortunately (or fortunately – depending on your perspective) one of the first opportunities that... [Read more of this review]

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Articles

Talking To Your Spouse About Your Illness: How Much is Too Much?

by Lisa Copen “It’s as if there are thumb tacks in our bed,” I lament to my husband as he crawls in on the other side of our bed. “Logically I know nothing is there, but my body would argue otherwise.” “I’m sorry,” he says as sympathetically as he can, but what else can he do? “I feel a little nauseous... [Read more]

“I Just Want To Help!” When People Comment On Your Illness

by Lisa Copen We may find ourselves shocked to find out just how much we are the on the prayers of loved ones who are a part of our inner circle. They may actually be concerned about us more than we realize in regard to our health. So when they say hurtful things we are left wondering about their intent. We can do our best to rise above the hurt feelings... [Read more]

Multiple Chemical Sensitivity Can Be Considered an Invisible Illness

“I can’t even go to church anymore now that perfumes make me break out and start itching so badly.” “I never thought I would end up so simply because I decided to get my carpets cleaned. That started it all and life has never been the same.” “Everyone thinks I am exaggerating the amount of pain I am in. When I say... [Read more]

Your New Chronic Illness Small Group: Who Is Invited?

by Lisa Copen As you begin to decide on the logistics of your support group, one of the first things to consider is who you would prefer to actually attend. For example: - Will this group before men, women, adults, and/or teenagers? - Can you see your group being helpful for those who have just been diagnosed as well as people who have lived with an... [Read more]

Living With Invisible Illness: 5 Ways To Get Over Aggravations

by Lisa Copen “You look so good! You can’t be as bad as you say. You look perfectly healthy.” “You think you have fatigue? Try working full-time plus having four children! Then you’ll know what chronic fatigue is.” “I think you’re spending too much time thinking about how you feel. You need to just get... [Read more]

What Exactly Is A Chronic Illness And Who Defines It?

by Lisa Copen If you were to walk up to a person on the street and ask him what he believed the difference was between illness and health, chances are that you would likely receive a fast reply about how health is when the body works correctly and illness is when it does not. When one starts to live with daily symptoms that resemble a chronic condition,... [Read more]

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