Are You Blogging for the Cause? Post Your Blog Here!
Print This Post
September 9, 2009 by admin
Filed under Free Ways to Help, Online Ways to Help, What's New, How to Help
Hundreds of people are blogging for the cause of Invisible Illness Week! Thank you!
We look forward to visiting you blog post. Please write a sentence or two about your post and provide your link. We look forward to reading it and possibly sharing it with others too.
And if you haven’t yet, we’d love to have you register “officially” over at Bloggers Unite!
Here is a sampling of some of the blogs by illness bloggers who have signed up with Bloggers Unite and the blogs they have written. Be sure to check them out!
____________________________
PRESS RELEASE – feel free to reprint
____________________________
Chronically Ill Unite September 14
to Blog About Invisible Illness Issues
9/9/09 – SBWIRE – SAN DIEGO — Who would guess that nearly half of the U.S. population lives with a chronic illness? But according to a study by the Robert Wood Johnson Foundation over 133 million people have an illness or condition, most of which are invisible, and many that cause daily pain. Illnesses can range from Reflex Sympathetic Dystrophy to diabetes, multiple sclerosis to fibromyalgia, or painful conditions like back pain and migraines.
With 75 percent of internet users using the internet for health information (Pew Internet Project, 8/08) and many of them seeking support, thousands of bloggers now post daily journals about the emotional challenges they face with daily chronic pain.
National Invisible Chronic Illness Awareness Week, September 14-20, 2009, invites bloggers to have a significant role in their awareness campaign. For example, part of their outreach has been featuring guest bloggers on their own web site invisibleillnessweek.com , as well as inviting bloggers around the globe to commit to blogging about invisible illness issues. To help spread the word they have also create a meme, “30 Things About My Invisible Illness You May Not Know” that people have posted on Facebook, blogs and other social networks.
Lisa Copen, who founded National Invisible Chronic Illness Awareness Week in 2002 says, “Though our illnesses and symptoms may vary, we still have a great deal in common. We can learn from one another about coping and finding the balance of taking care of ourselves yet living life to the fullest.” Copen says patient blogs aren’t depressing like healthy people may assume. “Illness bloggers don’t typically dwell on the logistics of symptoms, lab tests, or hospital stays. Instead, they write on everyday topics and how their illness impacts their families, finances, careers. They may discuss patient advocacy issues, but they also write about vacationing with an illness or dating when you have a chronic illness.”
Invisible Illness Week was recently the host of Grand Rounds, the largest medical blog carnival on the internet.
Over 300 people have officially committed to blogging for Invisible Illness Week so far and many are sharing on their Facebook notes page or other social network. Copen encourages those who do not have a blog to shares something about their illness with Facebook friends, a few Twitter posts, or even in the comments section of the invisibleillnessweek.com web site.
If you would like to join this unique opportunity to blog for awareness about invisible illnesses, see www.invisibleillnessweek.com for details. Invisible
Illness Week’s highlight is a 5-day virtual conference with 20 speakers that can be heard online for free on a topics such as marriage with illness, applying for disability, setting boundaries, and when your child is ill.
Copen is also the founder of Rest Ministries which sponsors the event and IllnessTwitters.ning.com for anyone who “tweets” on health or medical conditions.
Popularity: 9% [?]
http://novelpatient.com
I posted to my Blogger this morning and put your button up also. :) Thanks for all you do. I already have joined your page in FB and posted their also.
Here is my URL to my blog: http://rhiannonsrisetodreamstate.blogspot.com/201…
My disability involves not being able to deal with websites that have a lot of jittery animations and twitter posts moving along, etc.
Goodbye.
Assalamualaikum/peace be upon you!
Hi heres my link to the blog post i made
http://hal786.wordpress.com/2009/09/14/national-i…
it'll become available/live for all to see tomorrow on the day 14th september!!
My friends and I have several blog posts planned for Invisible Illness Week. We all have fibromyalgia, plus a variety of other issues. Come visit us at http://fabfibrofriends.blogspot.com/ Please leave a comment so we can come visit your blog!
Check out my blog I will dedicate all week to the cause starting Sept 14 http://dj-astellarlife.blogspot.com/ Thank you all who also are posting!
My blog is about fibromyalgia, IBS, PCOS and TMJ – Fibromyalgia Is Not My Life
I will be not just be writing about fibromyalgia this week but I will be discussing Irritable Bowel Syndrome; What is it? What treatments there are? How is it different for fibromyalgia sufferers? How it affects me and how I am treating it naturally.
Todays blog post is titled: What is Irritable Bowel Syndrome? What are the symptoms? What foods may make IBS worse?
http://www.FibromyalgiaIsNotMyLife.com
Hi, I'm Christina Gombar, a published author working next on a memoir, Breathing Under Water: Living With and Lying About Chronic Fatigue Syndrome.
Below are links to a few chapters, articles, and blog posts:
I discuss the financial challenges of the chronically ill here:
http://www.christinagombar.com/blog/?p=234
(Needed: Financial Medicine for the Chronically Ill)
Snake Oil Cures Here:
http://www.christinagombar.com/blog/?p=43 (The Snake Oil Diaries: An Introduction)
Living Without Parenting here, in an Interview on Belief.Net where
I spoke about how chronic illness affected my family plans:
http://blog.beliefnet.com/beyondblue/2009/01/chri…
This literary piece discusses the surreal experinece of being transformed from one type of being to another, with the arrival of my ci:
http://www.christinagombar.com/doc.php?doc=ghost&… (Ghost Life)
My blog is the story of our family and dealing with chronic illness. My daughter has had CFIDS since 2005, celiac disease since 2008, and neurally mediated hypotension/orthostatic intolerance. Here's the blog:
http://livingchronically.blogspot.com
Here's my blog post! http://bevinnesthots.blogspot.com/2009/09/30-thin…
http://zaduzbina.livejournal.com/
Today's article is about how Irritable Bowel Syndrome (IBS) affect people with fibromyalgia differently than people who do not.
You can find it here at: http://www.fibromyalgiaisnotmylife.com/2009/09/fi…
or
http://www.FibromyalgiaIsNotMyLife.com
I'm blogging for the cause! Today's blog post is all about trying to make my diabetes visible
http://instructionsni.blogspot.com
Today's blog post for Invisible Illness Week is titled, How Irritable Bowel Syndrome (IBS) affects me and how I treat it naturally.
http://www.fibromyalgiaisnotmylife.com/2009/09/ho…
I have also posted Monday, Tuesday and Wednesday for the cause.
Fibromyalgia Is Not My Life
http://www.FibromyalgiaIsNotMyLife.com
I joined Bloggers Unite a few days too late to join with their blog-count… but I live with multiple invisible illnesses myself.
http://opendoor2eclecticmind.wordpress.com/
Here is a blog post for Invisible Illness Awareness week:
http://journey2balance.wordpress.com/2009/09/17/i…
Thank you so much for all you do to make us all more visible!
An often funny blog, always fun blog about life, lyme, family http://www.iammimi.com
I've been blogging for the cause all week. I have a few blogs that are clearly marked with the web address for Invisible Chronic Illness Awareness week. You can read them at:
http://fibromyalgia-morethanapain.blogspot.com
My blog post is on the four big lies that others believe about those with invisible chronic illnesses.
http://elizabethmcclung.blogspot.com/2009/09/nati…
I blog at The Butter Compartment, a blog about life with type 1 diabetes. Here's my post for Invisible Illness Week: What You Can't See, CAN Hurt You http://www.thebuttercompartment.com/?p=3589
Oops changed my url: http://WWW.InvisibleIllness.COM“ target=”_blank”>http://bevysthots.blogspot.com/search/label/HTTP%…” target=”_blank”>http://WWW.InvisibleIllness.COM
I just found out about this, but I will try to do some serious posting over the weekend. Here's my blog: http://kb-cloudbusting.blogspot.com/
I did my blog today: http://gaelyne.com/random_experiments/30-things-a…
http://www.rosemaryl.blogspot.com
My blog gives a humorous and sometimes sad outlook on the effects of fibromyalgia in your life.
My blog http://computingandtechnology–microsoft.blogspot… =)
My blog focuses on living with fibromyalgia as well as mental health issues and my activism related, among other things. I will emphasize this awareness campaign during Invisible Illness Week at http://unavitabella.com/blog. I look forward to connecting with more of these amazing people sharing here!
Thanks, Amy! I went and read some of your beautiful blog. keep up the great work and encouragement!
I have posted my list of 30 things about my illness. I am looking forward to participating this year in a more active way for invisible illness week.
http://homeschoolblogger.com/hmschlmomto2/
Pam Hunter
My blog is about my 16 year old son, who has Schizoaffective Disorder, Bipolar type. My 30 things are from a mom's point of view.
http://chrisahickey.blogspot.com/2010/08/30-thing…
hi my blog focuses on my struggles with lupus (sle). It also is about bringing awareness and education to others about Lupus. So that they can understand what Lupus really is. My blog is also just my random thoughts about certain issues. http://chattykathy717.blogspot.com/ =]
My blog focuses on how to "Create a Positive Day!" while living with chronic pain. http://createapositiveday.blogspot.com/
Here is a post specifically about Invisible Illness week: Crutches = Better Parking. http://createapositiveday.blogspot.com/2010/09/cr…
Hi! I am living with and blogging about Rheumatoid Arthritis and Fibromyalgia. I have several posts up about RA, such as this one: http://www.mom2ateam.com/2010/06/makin-some-noise… and plan to write several more during the week of September 13th. I'll also be writing about Fibromyalgia and PCOS. I am so looking forward to joining all the others in bringing awareness about an issue that affects so many! My blog is here: http://www.mom2ateam.com.
http://www.focusandresponse.blogspot.com
I have started blogging about my journey with fibromyalgia, rheumatoid arthritis, depression/anxiety.
I also post information about the diseases I have on my facebook page.
I will posting daily 9/13-17 for National Invisible Chronic Illness Awareness Week! http://www.FeliciaFibro.com
During next week I'll be sharing more of my interview with Lynne Matallana, founder and president of the National Fibromyalgia Association, sharing the "30 things" list about fibromyalgia and posting 2 entries from my mom on what having an adult child with fibromyalgia is like.
I believe my entire site offers info about living with a fibromyalgia though – resources, FAQs, tips, tricks, interviews, tools I use and what it is like living with the syndrome.
I will posting daily 9/13-17 for National Invisible Chronic Illness Awareness Week! http://www.FeliciaFibro.com
During that week I'll be posting more of my interview with Lynne Matallana, National Fibromyalgia Association founder and president, my meme of 30 things about living with fibromyalgia and two entries on what it is like having an adult child with fibromyalgia – written by my mom.
My site is also full of resources, FAQs, tips and positivity!
My Blog is called A Chronic Pain Journal. I have written a letter to a Pain Specialist from the perspective of the Chronic Pain Patient – it is in response to Dr. Robs' letter to the Pain Patient.
Go to the Dear Dr. tab of http://chronicpainjournal.wordpress.com
I am also looking for respondants for a Survey, which is about our internal vision of ourselves and the outside perception of the Disabled. It only takes about 3 minutes and no personal information is required to complete it.
Please pass it along!!!
Is it still the 14th? :-) http://kroniclife.wordpress.com/2010/09/15/im-not…
I have Fibromyalgia and chronic migraines. My site Brainless Blogger discusses mostly the chronic migraine aspect http://brainlessblogger.blogspot.com I am quite in to the whole invisibilty awareness, since I have found we often hinder ourselves by masking our pain and minimizing it to others. I also have a facebook page called Making Invisibly Disability Visible.
My blog is for you if you're creating a life you love, with or without chronic conditions! I've posted 3 entries (so far!) for Invisible Illness Week 2010 and will add one more ("Down the Rabbit Hole" is the working title) this weekend. I hope you enjoy "Invisible or Imaginary", "Ostrich or Sheepish, Both, or Neither?", and "30 Things I May Not Have Mentioned about My Invisible Illness".
I hope you enjoy http://www.julianajoie.com and look forward to supporting you in creating a life you love!
Hello,
I have Complex Regional Pain Syndrome, CRPS, which is sometimes also called, Reflex Sympathetic Dystrophy, RSD. In my blog I write openly and honestly about being a 25yr old girl living with CRPS. My aim is to raise awareness about the painful nerve disorder.
http://www.crpsgirl.wordpress.com
I am a little bit late for Invisible Illness Week, but I have just posted the, ' 30 things you may not know about my illness' questionaire on my blog. I think the Invisible Illness campaign is brilliant and I look forward to reading other peoples blogs, and sharing my blog with others.
I started my Blog for people with Fibromyalgia and other illnesses to come together and talk to each other, help each other out and to make friends! Having a hard time getting people to start chatting on my Blog though as I have no advertising money! So please come by and start chatting! Thanks so very much and God Bless!
I will put a link to this site on my Blog too! = )
what is your address. I have recently been diagnosed with fibromyalgia. Would like to connect with others and talk about this.
Hi I’m Australian and blog about living with dysautonomia (plus progressive neuropathy, small fibre neuropathy, degenerative disc disease to name but a few). Here’s my post for Invisible Illness Awareness Week.
Cheers
Michelle :)
http://bobisdysautonomia.blogspot.com/2011/09/invisible-illness-week-2011.html
Chronic Pain Journal is currently having a petition for all of those who have Chronic Invisible Illness as it is our week.
Please sign at http://painisreal.wordpress.com
We have 500 signatures so far…..only a name is required.
Thanks,
I am blogging about systemic lupus. Ellen
I’ve started blogging about what its like learning to horse ride with an invisible illness. I’ve had M.E. for over 8 years now but took up the challenge of horse riding two years ago.