Seminar: Positively Real: Keeping The Topic of Illness Sweet without Sugar-coating

sugar-coatingKelly Young

Do you ever grow weary of how the media portrays your illness (if they even do)? Does it ever feel like they are sugar-coating the disease and the reality of it? How about when the doctor describes your illness as being more of an inconvenience than a life-changer? What can you do in these situations? How do you keep a sense of humor? When do you let it go, versus stand up for what you believe? Kelly will describe some of the ways she copes with illness and the misportrayal of her illness, among others.

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sugar-coating

About Kelly Young

Kelly Young is a patient advocate providing ways for people to be better informed and have a greater voice in their healthcare. She received the 2011 WebMD Health Hero award for her work with Rheumatoid Arthritis (RA) patients. Through her writing, speaking, and use of social media, Kelly stays busy helping others to become more aware of Rheumatoid Disease; advocating to the medical community for patients’ needs; creating opportunities for patients to connect and empower themselves.

In 2009, Kelly created RA Warrior.com, a comprehensive website about RA of about 700 pages and the hub a large, vibrant patient community. She also writes periodically for professional newsletters and websites including Healthcare Professionals Live and The Rheumatologist. Kelly serves on the Mayo Clinic Center for Social Media Advisory Board. Kelly has consulted for industry professionals and CME projects.

Thousands have enjoyed her YouTube channel’s realistic Public Service Announcements which that RA is not just “arthritis.” There are about 16,500 friends on her informative and friendly Facebook Fan Page. She moderates a weekly Twitter-chat on rheumatology topics, which can be followed with the hashtag she created: #rheum.

Kelly is the founding president of the Rheumatoid Patient Foundation (RPF) the first non-profit which exists solely to improve the lives of Rheumatoid patients. Through the RPF, she has initiated projects and built relationships which will expand understanding of RA and improve care for patients. It is her passion to see that there will not be another generation of Rheumatoid patients who suffer the same way past ones have.

Kelly is a mother of five who has homeschooled for 18 years. She has lived with unrelenting Rheumatoid Disease for six and a half years. She shares love and hope with others, grateful for God’s help to use her illness for good.

Get to know Kelly! Kelly’s web site, RA Warrior| Kelly on Facebook | Kelly on Twitter

At RAWarrior you will find 700 free articles w/ the best information on RA online, served up in a hopeful and encouraging voice and a free monthly newsletter.

Comments

  1. JulieLyn says

    Hi Kelly, it was nice (so good) to hear you share. YES, just because you take the particular meds doesn’t mean you are going to be up to snuff, as in the commercials. I find it frustrating and it is funny when you mentioned your Mom…LOL I had to chuckle….(Nuff said)
    I am very particular regarding who I share with…at Church (or anywhere) when people say…oh you look good and stuff like that ..I just respond “Thank you, God is Good!”
    and say no more except chat about “other things”…It is not how I want to be but it is the way it is. I thank you, as now I don’t feel terrible in being protective. God Bless and thank you for giving of yourself….

  2. says

    I’m also not a fan of the prescription commercials for chronic pain, depression and Fibromyalgia. It shows a person struggling, taking a pill and than moving along with their in ease.

    Humor has been my friend prior to developing my pain conditions so I use it frequently when explaining my days. Besides, humor is part of my pain management.

    I also want to let you know I learned a few things about RA through your website. Thank you for sharing your experiences and time.

  3. Lorraine Carlson says

    So appreciate your experience-based knowledge and passion to educate others about the reality of living with RA, Kelly! I’m a bit more cynical about why the media puts a sugar-coating on their stories about us. Since they depend solely on ad revenues to stay in business, the sponsoring pharmaceutical companies get to influence the tone and content of what gets published.

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