Do you ever grow weary of how the media portrays your illness (if they even do)? Does it ever feel like they are sugar-coating the disease and the reality of it? How about when the doctor describes your illness as being more of an inconvenience than a life-changer? What can you do in these situations? How do you keep a sense of humor? When do you let it go, versus stand up for what you believe? Kelly will describe some of the ways she copes with illness and the misportrayal of her illness, among others.
About Kelly Young
Kelly Young is a patient advocate providing ways for people to be better informed and have a greater voice in their healthcare. She received the 2011 WebMD Health Hero award for her work with Rheumatoid Arthritis (RA) patients. Through her writing, speaking, and use of social media, Kelly stays busy helping others to become more aware of Rheumatoid Disease; advocating to the medical community for patients’ needs; creating opportunities for patients to connect and empower themselves.
In 2009, Kelly created RA Warrior.com, a comprehensive website about RA of about 700 pages and the hub a large, vibrant patient community. She also writes periodically for professional newsletters and websites including Healthcare Professionals Live and The Rheumatologist. Kelly serves on the Mayo Clinic Center for Social Media Advisory Board. Kelly has consulted for industry professionals and CME projects.
Thousands have enjoyed her YouTube channel’s realistic Public Service Announcements which that RA is not just “arthritis.” There are about 16,500 friends on her informative and friendly Facebook Fan Page. She moderates a weekly Twitter-chat on rheumatology topics, which can be followed with the hashtag she created: #rheum.
Kelly is the founding president of the Rheumatoid Patient Foundation (RPF) the first non-profit which exists solely to improve the lives of Rheumatoid patients. Through the RPF, she has initiated projects and built relationships which will expand understanding of RA and improve care for patients. It is her passion to see that there will not be another generation of Rheumatoid patients who suffer the same way past ones have.
Kelly is a mother of five who has homeschooled for 18 years. She has lived with unrelenting Rheumatoid Disease for six and a half years. She shares love and hope with others, grateful for God’s help to use her illness for good.
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