How Can I Help Invisible Illness Awareness Week?


Thank you so much for your desire to help me with Invisible Illness Awareness Week. I began this week in 2002–hard to believe it has been that long!–and because of people like YOU who are willing to help, we continue to encourage thousands and thousands. If you don’t believe me you an hear what our crowd last year would have sounded like (minute 1:40) if we were in a football stadium.

There are many ways to help. Some of them may be exactly what you LOVE to do or find easy to do. Others may seem waaa–a-a-ay too complicated. Please scan the list and see what sounds appealing to you. If you click on any link it will open in a separate window.

My personal note of reality: I really appreciate your help. My son starts school 9/3 and so between summer chaos, knee injections for the last three weeks and so much more (you know the drill) I do need and REALLY appreciate your help. Because my hands are aching as I type, my doctor says my rib has likely refractured for a third time, and, well, the list is too long to explain, but let’s just say YOU will be the one making the difference this year, not a press release or an event or an article. YOU… sharing, commenting, writing. YOU’RE A GEM! ~Lisa

 Here are the places Invisible Illness Week is:

How to help in a hurry

I have tried to make it easy so you can click through above quickly to be fully connected.

  • Every time a new article appears in our website you will get an email (not more than 1 per day) Go here and enter your email address. You will also get our free ebook (whoo hoo!)
  • On Facebook? Click “Like” to get updates. And then go to our Event Page and click “Attending.” (“Attending” means that you will be involved in the week in some way, not that you need to get on a plane and come to my front door. I mean, you could come but you may be handed a broom. I wouldn’t risk it.)
  • Want to discuss invisible illness issues? Join our Facebook group and talk about what inspires you, news stories that make you want to stomp your feet, what you are blogging about, that kind of thing.
  • On Pinterest? We have nearly 8000 pins which I have pinned all year! Follow us here or if you just want our invisible illness-related boards, follow us here and here and here.
  • On YouTube? Don’t miss our new videos. Click “subscribe” here. (the red button) (Your hand should be hurting by now from all this clicking.)
  • On Twitter? Follow us @invisibleillwk and watch for the hashtag #iiwk13 #invisibleillness and #invisibleillnessichooseto

What social media do YOU use?
This is the way we REACH people and when we reach people we change lives!

lisa-boredSo Share, share, SHARE

Comment. Why? Because YOU will encourage others!

See something about Invisible Illness Awareness Week? Comment. We LOVE to hear from you and know what encourages you, what makes you cry, what makes you do a happy dance when no one is looking.

  • Comment here at our web site We’ve made it easy-peasy to sign in and it can determine who reads the article. Some people are more likely to read YOUR comments than our article. Really. It can be short and sweet if you like or even “thanks for sharing about this” but let people know what they post is worthwhile to you.
  • Comment on the articles at Huffington Post (so they know it’s a hot topic!) | When Your Friend Is Ill the Right Words Are a Blessing
  • Comment on web posts, Facebook posts, YouTube videos, Pinterest pins, even tweets. Be sure to comment in people’s I CHOOSE TO photos they have uploaded to.
  • Visit some of the memes people have filled out and leave a comment. Assure them they are not alone. It’s kind fun to see what makes people happy or bums them out or their favorite gadget.

lisa-what-to-sayDo you like to write?

There is always room for those of you who like to share your voice!

Do you like to read?

Do you want to share about your illness?

lisa-coffeeDo you consider yourself an advocate and want to help in major ways?

Awww. We LOVE our advocates! Thank you for using your talents and influence to help us encourage those with hidden illness.

  • Post our press release (or edit it to fit your needs) to your own readers.
  • Share information about our photo campaign and encourage people to upload photos as well as vote on others (you can vote once per day)
  • If you are on Twitter be sure to retweet our tweets each day!
  • Post a blog or a series of blogs in topics related to invisible illness. You can find some inspiration here.
  • Post a blog asking people how choices make a difference in how we cope/live with chronic illness and refer them to our photo campaign.
  • Follow us on Facebook and share, share, share. Take our topic idea and ask your own readers to share their experiences to create more activity in your own page.
  • Are you creating an event around Invisible Illness Awareness Week? Let us know so we can share with our friends!

So, whatcha gonna do?

Can I make a suggestion? Pick 3. You don’t have to do them all. . . you don’t have to feel obligated.

But pick 3.

Comment, share, and write . . . Blog, comment, and tweet . . .  Upload a photo for our contest, share and put your left foot in. Oh, wait, well, you get the idea.

mug-bad-flare-dayAnd to inspire others and practice look down –below this article. See the comment box? Tell us what 3 you’d like to do to help out and as of September 15, 2013 I will randomly choose a winner for our cute mug that says, “Warning: Bad Flare Day.” With something even nicer on the back side (you can see more here).

So, what’ll it be? What are your 3?


  1. satscout says

    Mostly Facebook post… and Facebook share… and Facebook comment… you get the picture. :-) If I get a couple of non-fried brain cells together at the same place at the same time I’d like to do the 30 things meme (I saved the link so I can find it again) but I can’t guarantee the brain fog will lift long enough to do it! I can so relate to the “bad flare day” mug :3 Describes me well, and that’s the picture I chose for the FB share of this post.

  2. Teresa Lynn Hendry says

    I will do the meme, read other members, comment on said men’s, visit pintrest & probably repin a few. For sure will attend events & facebook about it too :-D

    • Teresa Lynn Hendry says

      P.S. – I absolutely LOVE the mug. I want it to come in tshirt form to do I can wear it & point @ it when I get questions, looks, etc…

  3. Jamie Holloway says

    I plan on blogging invisible illness week and of course I share a lot of the articles or posts that I come across about it. I have not uploaded a picture yet, but I hope to soon. I just have to find an awesome photographer to take a picture of me doing something. :) Perhaps my caregiver when he comes this week. I appreciate you Lisa and thank you for your hard work. Oh and I did do the meme.

  4. Kendra Williamson says

    I went into the DHS to apply for food stamps last week, this young lady behind a desk looks at me and says….mam, why cant you work? I just sat there. I wanted to say do you have the rest of the afternoon?? I said…. I would not be here applying for food stamps if I had money hidden somewhere… I said I would be home in BED! She was accusing me of having money hidden. I just wanted to cry. I have no source of income just a credit card…. just don’t know what else to do. Please pray for me that my house in the town I moved from sells. Thanks. Love you Lisa!!! Just really down…

  5. Rhia Steele says

    With many “chronic invisible illnesses” all too often I am looked upon in my town as being someone who is “healthy”. Without me explaining my pain, my illnesses, my medications, & what my life is truly like, no one outside my family and friends may know. It is hard to explain that I have Lupus, RA, joint replacements, DDD, DJD, osteoarthritis, Raynaud’s, Sjogren’s, and the list continues. People have this idea in their heads of what “sick” people should look like, act like, be like, but with chronic illness, we do not really “show” a certain way we look. We are your neighbor, your teller at the bank, your newspaper person, or someone walking down the street. Yet, we are dealing with often more than one type of chronic illness that takes its toll on us, whether you can “see” it or not.

Leave a Reply

Your email address will not be published. Required fields are marked *