How Can I Help Invisible Illness Awareness Week?
Thank you so much for your desire to help me with Invisible Illness Awareness Week. I began this week in 2002–hard to believe it has been that long!–and because of people like YOU who are willing to help, we continue to encourage thousands and thousands. If you don’t believe me you an hear what our crowd last year would have sounded like (minute 1:40) if we were in a football stadium.
There are many ways to help. Some of them may be exactly what you LOVE to do or find easy to do. Others may seem waaa–a-a-ay too complicated. Please scan the list and see what sounds appealing to you. If you click on any link it will open in a separate window.
My personal note of reality: I really appreciate your help. My son starts school 9/3 and so between summer chaos, knee injections for the last three weeks and so much more (you know the drill) I do need and REALLY appreciate your help. Because my hands are aching as I type, my doctor says my rib has likely refractured for a third time, and, well, the list is too long to explain, but let’s just say YOU will be the one making the difference this year, not a press release or an event or an article. YOU… sharing, commenting, writing. YOU’RE A GEM! ~Lisa
Here are the places Invisible Illness Week is:
- Our main website, invisibleillnessweek.com
- Link to share I CHOOSE TO photos
- Facebook Page
- Facebook Group
- Facebook Event Page
- Youtube – most recent uploads
- YouTube – 2102 Seminars
- *EVERYTHING All in one place (at Rebel Mouse, see our latest postings, tweets, pins, videos and more)
How to help in a hurry
I have tried to make it easy so you can click through above quickly to be fully connected.
- Every time a new article appears in our website you will get an email (not more than 1 per day) Go here and enter your email address. You will also get our free ebook (whoo hoo!)
- On Facebook? Click “Like” to get updates. And then go to our Event Page and click “Attending.” (“Attending” means that you will be involved in the week in some way, not that you need to get on a plane and come to my front door. I mean, you could come but you may be handed a broom. I wouldn’t risk it.)
- Want to discuss invisible illness issues? Join our Facebook group and talk about what inspires you, news stories that make you want to stomp your feet, what you are blogging about, that kind of thing.
- On Pinterest? We have nearly 8000 pins which I have pinned all year! Follow us here or if you just want our invisible illness-related boards, follow us here and here and here.
- On YouTube? Don’t miss our new videos. Click “subscribe” here. (the red button) (Your hand should be hurting by now from all this clicking.)
- On Twitter? Follow us @invisibleillwk and watch for the hashtag #iiwk13 #invisibleillness and #invisibleillnessichooseto
What social media do YOU use?
This is the way we REACH people and when we reach people we change lives!
- Share a photo of your choice for our 2013 I CHOOSE TO campaign. And then share it with your Facebook followers to get votes. We’re giving away a Kindle Fire to the winner with the most votes 9/15. Seriously. A Kindle fire. As my son would say, “You will NEVER be bored again” (especially in those waiting rooms)
- When you see an image or link in one of these places where you participate, share it.
- If you find an article you like at invisibleillnessweek.com share it, pin it, tweet it (you get the idea) And we have some of our BEST articles all in one place, just sayin’
- If you are on Twitter, follow us @invisibleillwk. You can RT our daily tweets or pick your own here.
Comment. Why? Because YOU will encourage others!
See something about Invisible Illness Awareness Week? Comment. We LOVE to hear from you and know what encourages you, what makes you cry, what makes you do a happy dance when no one is looking.
- Comment here at our web site InvisibleIllnessWeek.com. We’ve made it easy-peasy to sign in and it can determine who reads the article. Some people are more likely to read YOUR comments than our article. Really. It can be short and sweet if you like or even “thanks for sharing about this” but let people know what they post is worthwhile to you.
- Comment on the articles at Huffington Post (so they know it’s a hot topic!) | When Your Friend Is Ill the Right Words Are a Blessing
- Comment on web posts, Facebook posts, YouTube videos, Pinterest pins, even tweets. Be sure to comment in people’s I CHOOSE TO photos they have uploaded to.
- Visit some of the memes people have filled out and leave a comment. Assure them they are not alone. It’s kind fun to see what makes people happy or bums them out or their favorite gadget.
There is always room for those of you who like to share your voice!
- Submit an article for our Invisible Illness Week website.
- Write a blog post for your own website about an invisible illness issue. And put our blogger badge on your website.
- Blog “for the cause,” about what you CHOOSE (the 2013 campaign), or share your story. Don’t forget to link it up to one of our link parties so people can find it! See instructions here.
Do you like to read?
- Many people have blogged and linked up their own blogs to our link parties. Visit some of these and leave a comment.
- Read some articles at invisibleillnessweek.com (and don’t forget to share, like, tweet, and pin. And put your left foot in and shake it all about. . . oops. sorry.
- Enter the photo contest, for goodness sakes. You NEED a Kindle! Maybe you will win.
Do you want to share about your illness?
- If you have your own website or a place to post a blog on “your story“ do so, and be sure to link it up!
- Do our “30 Things You May Not Know About My Invisible Illness“ and link it up (and share the link with your friends too)
- Post as many photos as you’d like to our 2013 I CHOOSE TO… Campaign and share it with your friends so they will vote for your photo as well. (The person behind the photo with the most votes will win a Kindle Fire that a generous person has donated!)
Do you consider yourself an advocate and want to help in major ways?
Awww. We LOVE our advocates! Thank you for using your talents and influence to help us encourage those with hidden illness.
- Post our press release (or edit it to fit your needs) to your own readers.
- Share information about our photo campaign and encourage people to upload photos as well as vote on others (you can vote once per day)
- If you are on Twitter be sure to retweet our tweets each day!
- Post a blog or a series of blogs in topics related to invisible illness. You can find some inspiration here.
- Post a blog asking people how choices make a difference in how we cope/live with chronic illness and refer them to our photo campaign.
- Follow us on Facebook and share, share, share. Take our topic idea and ask your own readers to share their experiences to create more activity in your own page.
- Are you creating an event around Invisible Illness Awareness Week? Let us know so we can share with our friends!
So, whatcha gonna do?
Can I make a suggestion? Pick 3. You don’t have to do them all. . . you don’t have to feel obligated.
But pick 3.
Comment, share, and write . . . Blog, comment, and tweet . . . Upload a photo for our contest, share and put your left foot in. Oh, wait, well, you get the idea.
And to inspire others and practice look down –below this article. See the comment box? Tell us what 3 you’d like to do to help out and as of September 15, 2013 I will randomly choose a winner for our cute mug that says, “Warning: Bad Flare Day.” With something even nicer on the back side (you can see more here).