Thurs Chat: Being an advocate for awareness for any disease
We’re talked about advocacy on Thursday at 11 AM PST/2 PM EST (USA) at our Invisible Illness Awareness Week Facebook Page. Whether you have an illness-related blog to just posting about invisible illness stuff on Facebook occasionally, chances are you are an advocate.
We were joined by special guest, Tiffany Westrich. She is the CEO and Co-Founder of the International Foundation for Autoimmune Arthritis (formerly known as the International Autoimmune Arthritis Movement) and Event Coordinator and Host of World Autoimmune Arthritis Day.
Below are links to the questions we chatted about and the responses. You can still click on any link and find the conversation and Facebook and comment.
Hello, friends! I am so glad you are here to participate in today’s chat. We’re excited to have Tiffany Westrich with us and she is an advocate! She is the CEO and Co-Founder of the International Foundation for Autoimmune Arthritis (formerly known as the International Autoimmune Arthritis Movement) and Event Coordinator and Host of World Autoimmune Arthritis Day. —> Read more here
We will be chatting about how we are advocates and if we feel we make a difference. Tell us in a sentence or two what you would like us to know about you, like where you are from, your age, your illness. —> Read more here
If you are participating in today’s chat, you are taking your first step in being an advocate just for showing up. Being an advocate means to publicly support a cause. So there are varying degrees of advocating. How do you advocate for something illness-related and share what health-related topic it is? (blogs, social media, writing, videos, etc.) —> Read more here
The Internet gives the opportunity for us all to be advocates, even when we don’t feel well. When I began my organization it was 1996 and one of the few ways to advocate was in your own website or a newsgroup. Have YOU become more of an advocate than 5 years ago? How has it made you feel? Tiffany, maybe you can start us off because you have done a lot of advocating! —> Read more here
Some people are advocates in a more inspirational way, supporting those with a health condition, through writings and videos. What kind if advocate do you typically respond to? Those with clear causes and steps to make a difference, or those who inspire you to make changes in your own life–so you can inspire others? —> Read more here
Being an advocate for our own health–making sure we are assertive for our own treatment–can be exhausting. How would you encourage other people who have an illness to continue advocating when they are ready to collapse and let someone else decide things for them? What tricks or tools do you use to advocate for yourself? Tiffany, do you have some tips? —> Read more here
How does it feel to be an advocate for a health cause? Tiffany is an advocate for specific illnesses. When you are able to encourage others who are fighting the same battles, does it help you focus on how to spend your time and energy? Do you see your advocacy as something fun to do, something necessary, or a part of your calling and purpose for having this disease? —> Read more here
Is there a question you would like to ask Tiffany? She will be here a few more minutes if you would like to find out how she went from being a patient to an advocate for patients. —> Read more here
Thank you for participating in today’s chat about advocacy and we appreciate Tiffany joining us today! —> Read more here