Press Release – Invisible Illness Week Team Offers Free Ebook of 263 Tips

September 1, 2010 by admin  
Filed under Free Ways to Help, What's New, How to Help

* Feel free to share this on your blog, post it in your newsletter, whatever! Thanks for your help.

Invisible Illness Week Team Offers Free Ebook of 263 Tips

ebook chronic illness Press Release   Invisible Illness Week Team Offers Free Ebook of 263 Tips20 Experts share their best tips about living with a chronic illness, from coping with illness and relationship tips to travel and homeschooling.

San Diego, CA — (SBWIRE) — 09/01/2010 — National Invisible Chronic Illness Awareness Week is September 13-19, 2010. A free 80-page ebook is now available for download to anyone who signs up for daily updates from the web site invisibleillnessweek.com .

“Chronic Illness Tips: 263 Ways To Do More Than Just Get By” is by Invisible Illness Week founder, Lisa Copen and friends. Friends include chronic illness career specialist Rosalind Joffe, relationship expert and best-selling author Pam Farrel, advocacy authority Jennifer Jaff, and illness advocate Jenni Prokopy.

Over 20 contributors share their best tips to live successfully with chronic illness on a variety of topic. “These experts are people who have the credentials,” says author Lisa Copen, “but more importantly, they have experienced illness themselves or health issues of someone close to them. Their tips come from the experience of living with the challenges illness gives us.” The chapters include coping tools, relationship issues, career, faith, and practical tips, from traveling with an illness to homeschooling. There are also many tips on how to encourage someone who lives with a chronic illness.

National Invisible Chronic Illness Awareness Week is an annual event that features a free virtual conference online 9/13-17 with speakers each morning 10:30 – 12 USA Pacific time. There are a variety of ways a person can get involved including blogging for the cause, completing the Meme “30 Things You May Not Know About My Invisible Illness”, or joining the campaign on Facebook.

With nearly 1 in 2 people living with a chronic condition, about 96% of those people are suffering silently with invisible illnesses.

For more information see http://InvisibleIllnessWeek.com .

 Press Release   Invisible Illness Week Team Offers Free Ebook of 263 Tips

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Are You Blogging for Invisible Illness Week?

keyboard blogging invisible illness week Are You Blogging for Invisible Illness Week?Do you have a blog? You may have one and not even realize it! if you are part of a social network like the Rest Ministries Sunroom, you have a blog feature.

Hundreds of people are joining our efforts to blog about either Invisible Illness Week or their invisible illness! If you don’t have a blog, just try to post something about it somewhere and it will help us out a lot. (MySpace, Facebook, any social network you are a part of.)

Whenever you post something it helps us increase our exposure and it’s because of you this week is going to be a success!

A lot of our bloggers have joined Bloggers Unite Invisible Illness Week to let us know when and where and what topic they have blogged about. We encourage you to join (it’s free, quick and easy) so that your blog will get the most readers!

If you have posted your thought somewhere, be sure to let us  know below too in the comments section! We’d love to come and visit your blog!

 Are You Blogging for Invisible Illness Week?

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How to Add Current and Future Invisible Illness Week Seminars to Your Web Site

blogtalkradio How to Add Current and Future Invisible Illness Week Seminars to Your Web SiteIt’s easy to add the widget of the Invisible Illness Week seminars from 2008, 2009 and . . . 2010 will automatically appears soon after they happen- to your own blog or web site.

Remember, this year, 2010, we will be doing just 1 seminar a day with guest panelists.

The “code” is below. Just copy it and paste it into a text widget. You can also find it at the web site. If the code below does not work there is specific code at Blog Talk Radio depending on what blogging software you use, etc.

Do you want the code to feature a specific show on your blog or web site?

After the show is done recording, go to the archived shows for Invisible Illness Week, and go to the show you want. In the top right area is the Blog Talk Radio logo box with the show. To get that show only click on the little tiny button that says “Share” beside the envelope.

A box will open with “embed code” – the basic embed code will work on most sites, or you can choose the logo for other software you may be using. (If you are on Facebook, go ahead and click that logo now too, to share it on Facebook)

 How to Add Current and Future Invisible Illness Week Seminars to Your Web Site

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Ever Considered Leaving a NICE Note for Some Parking in the Handicapped Spot?

August 23, 2010 by admin  
Filed under Free Ways to Help, What's New, How to Help

handicapped parking sign invisible illness Ever Considered Leaving a NICE Note for Some Parking in the Handicapped Spot?

Have you ever watched a woman (or man) park in a handicapped parking spot and then you see her get out and walk into a building? Perhaps people around you may also be watching. . . and doubting that she has any kind of health issue.

But you know! Perhaps you noticed the slightest limp or her pause to catch her breath or her balance. Part of you wants to go up and say something–but what? And you don’t want to offend her either.

Have you ever considered leaving an ENCOURAGING note?many of us who have (legally!) parked in a blue spot have received rude notes left on our windshield, so why not leave an inspiring note?

What do YOU think? If someone left you a note that said something like we’ve listed below would you be encouraged or feel like someone was getting too personal?

Here are some ideas of what you could write. Feel free to add your own in the comments section below.

  • Invisible illness can be one of life’s greatest challenges. You are doing it with style!
  • You never know who’s life you are touching. Your strength despite your pain encouraged me today.
  • I live with invisible illness too and I wanted you to know someone is praying for you today.
  • I’ve lived with __________ for _____ years. Seeing you today encouraged me to keep on going. Thank you!
  • You never know how you can encourage someone just by doing daily errands. I have _________. Seeing you parking here and living life, was inspiring to me. Thank you.
  • I know personally how hard it is to live with daily pain. Thanks for reminding me to hang in there just by going on with your day despite your pain.

Read about our founder Lisa’s parking spot experience in the article, “Can Those with an Invisible Illness Park in the Blue Spots Without Others Seeing Red?”

 Ever Considered Leaving a NICE Note for Some Parking in the Handicapped Spot?

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Where are You Putting Your Encouragement Sticky Notes For Invisible Illness Week?

August 21, 2010 by admin  
Filed under Free Ways to Help, What's New, How to Help

note2 Where are You Putting Your Encouragement Sticky Notes For Invisible Illness Week?Where can you put them? Anywhere! It is fun if you snap a photo of where you placed your anonymous encouragement note for Invisible illness Week, but we know sometimes that is just not possible, but don’t let it stop you from sticking the note up!

Here are some places of ideas:

  • Stores, especially places that have medications, assistive devices, heat patches, pill boxes, etc.
  • Dressing room
  • The coffee shop bulletin board
  • The pool bulletin board
  • Children’s play areas that have bulletin boards or mom exchange areas
  • Church bulletin board, church hymnal, church bathroom, church office
  • On the windshield of a car parked in a handicap spot where you saw someone get out who looked as though their illness was invisible
  • Waiting rooms of you doctor’s office, on top of a magazine at the waiting room, counselors office, physical therapist, hospital, lab
  • On a table at a restaurant with the waitress’ tip
  • Send it to a friend, stick it inside your bills, put it on your mailbox

Where have you you put yours? Share your ideas below!

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You Can Make a Difference! Each One CAN Reach One!

August 7, 2010 by admin  
Filed under Free Ways to Help

Upload your own photos!

You can send them to us but it may take a few days for them to get uploaded. You can also do it yourself at Photobucket. You will need to create a free account first, if you don’t have one and then you can upload as many as you want. Our account is http://photobucket.com/invisibleillness . We’d love to see them!.

 You Can Make a Difference! Each One CAN Reach One!

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Read Some Great II Wk Blogs

keyboardd Read Some Great II Wk BlogsThanks to all of you who have blogged today for Invisible Illness Week. We appreciate you spreading the word about the event, but even more so, we re glad that you have taken some time to describe some part of your life and your experience of living with a chronic illness.

  • So far this morning you can read over 70 blog posts with people who have registered through Bloggers Unite. To read them click here at Bloggers Unite and then scroll down. Ont he right hand side it will say “Participating Blogs.”
  • You can also find people who have posted there meme “30 Things…” here in the comments section.
  • We recognized a few Invisible Illness Week blog posts earlier this week that we had visited.
  • You can also find a bunch of the Invisible Illness posts at Technorati, the blog “search engine.”

If you read a post, be sure to leave a comment, even if just a short one. All of our bloggers love to hear from you and know that you stopped by!

 Read Some Great II Wk Blogs

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Are You Blogging Today?

keyboarda Are You Blogging Today?Are you joining us and blogging about Invisible Illness Week or your invisible illness? If you don’t have a blog, just try to post something about it somewhere and it will help us out a lot. (MySpace, Facebook, any social network you are a part of.) Every time yuou post somewhere it helps us increase our exposure and it’s because of you this week is going to be a success!

A lot of our bloggers have joined Bloggers Unite to let us know when and where and what topic they have blogged about. you can read some awesome Invisible Illness Week blog posts that are all listed over there.

If you have posted your thought somewhere, be sure to let us  know below too in the comments section! We’d love to come and visit your blog!

Here is our press release about how bloggers are coming together for Invisible Illness Week.

Chronically Ill Unite September 14 to Blog About Invisible Illness Issues

Patient bloggers band together to bring awareness to invisible illness issues from handicapped parking confrontations to why they hate hearing “You look so good!”
 Are You Blogging Today?

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Connect with Other II Week Participants

September 10, 2009 by admin  
Filed under Free Ways to Help, What's New, How to Help

09 logo animated Connect with Other II Week ParticipantsDo you wish to connect with other participants of Invisible Illness Week? If so, we invite you to join the Invisible Illness Week GROUP in the Sunroom social network of Rest Ministries.

During the week while 4 seminars are happening each day, this is where we will also send you if you want to ask more questions of listeners on a particular seminar topic, if you have questions for the speakers that were not answered during the seminar, etc.

We are asking our speakers to sign in and check to see if anyone needs any additional information. If our speakers have handouts, this is where they will post a link to them.

The Rest Ministries social network, The Sunroom, has over 1300 participants and is a Christian environment for those with chronic illness. We understand that during Invisible Illness Week some of those involved may have different faiths or not have a religious preference. We ask that everyone be respectful of one another. If you do not wish to participate after Invisible Illness Week you can delete your membership.

Another option is to leave comments at the Blog Talk Radio web site where other listeners or the speakers can connect with you.

 Connect with Other II Week Participants

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Are You Blogging for the Cause? Post Your Blog Here!

keyboard coffeee Are You Blogging for the Cause? Post Your Blog Here!Hundreds of people are blogging for the cause of Invisible Illness Week! Thank you!

We look forward to visiting you blog post. Please write a sentence or two about your post and provide your link. We look forward to reading it and possibly sharing it with others too.

And if you haven’t yet, we’d love to have you register “officially” over at Bloggers Unite!

Here is a sampling of some of the blogs by illness bloggers who have signed up with Bloggers Unite and the blogs they have written. Be sure to check them out!

____________________________
PRESS RELEASE – feel free to reprint
____________________________

Chronically Ill Unite September 14
to Blog About Invisible Illness Issues

9/9/09 – SBWIRE – SAN DIEGO — Who would guess that nearly half of the U.S. population lives with a chronic illness? But according to a study by the Robert Wood Johnson Foundation over 133 million people have an illness or condition, most of which are invisible, and many that cause daily pain. Illnesses can range from Reflex Sympathetic Dystrophy to diabetes, multiple sclerosis to fibromyalgia, or painful conditions like back pain and migraines.

With 75 percent of internet users using the internet for health information (Pew Internet Project, 8/08) and many of them seeking support, thousands of bloggers now post daily journals about the emotional challenges they face with daily chronic pain.

National Invisible Chronic Illness Awareness Week, September 14-20, 2009, invites bloggers to have a significant role in their awareness campaign. For example, part of their outreach has been featuring guest bloggers on their own web site invisibleillnessweek.com , as well as inviting bloggers around the globe to commit to blogging about invisible illness issues. To help spread the word they have also create a meme, “30 Things About My Invisible Illness You May Not Know” that people have posted on Facebook, blogs and other social networks.

Lisa Copen, who founded National Invisible Chronic Illness Awareness Week in 2002 says, “Though our illnesses and symptoms may vary, we still have a great deal in common. We can learn from one another about coping and finding the balance of taking care of ourselves yet living life to the fullest.” Copen says patient blogs aren’t depressing like healthy people may assume. “Illness bloggers don’t typically dwell on the logistics of symptoms, lab tests, or hospital stays. Instead, they write on everyday topics and how their illness impacts their families, finances, careers. They may discuss patient advocacy issues, but they also write about vacationing with an illness or dating when you have a chronic illness.”

Invisible Illness Week was recently the host of Grand Rounds, the largest medical blog carnival on the internet.

Over 300 people have officially committed to blogging for Invisible Illness Week so far and many are sharing on their Facebook notes page or other social network. Copen encourages those who do not have a blog to shares something about their illness with Facebook friends, a few Twitter posts, or even in the comments section of the invisibleillnessweek.com web site.
If you would like to join this unique opportunity to blog for awareness about invisible illnesses, see www.invisibleillnessweek.com for details. Invisible

Illness Week’s highlight is a 5-day virtual conference with 20 speakers that can be heard online for free on a topics such as marriage with illness, applying for disability, setting boundaries, and when your child is ill.

Copen is also the founder of Rest Ministries which sponsors the event and IllnessTwitters.ning.com for anyone who “tweets” on health or medical conditions.

 Are You Blogging for the Cause? Post Your Blog Here!

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