Our 30 Things Meme About Your Invisible Illness

Have you filled out the Invisible Illness Week Meme? It’s called “30 Things You May Not Know About My Invisible Illness” and it can be both enlightening for others and even therapeutic for you! I just filled it out and every year my answers change just a bit. Find it–and read others– here: http://ow.ly/om0nS (and […]

Audio of All 2012 Seminars On USB Flash Drive


First, thank you so much to all who came to CNN’s Health chat last week. We had a great turn out and everyone at CNN said, “Consider this a great success!” Last week I ordered the USB Flash Drives and they are on their way! All the seminars for Invisible Illness Awareness Week have an […]

What I Learned About The Variety of Illnesses During #iiwk12


By Kathryn Treat Sunday ended National Invisible Chronic Illness Awareness Week.  I first posted Monday on National Invisible Chronic Illness Awareness Week and included a link to this website  .  I have read all the blogs posted (70) as of this writing.  What I have learned is that I am far from being the only person […]

Press Release: E-Patient Bloggers Are the Force Behind Awareness Campaign


If you live with an invisible illness, you may feel alone in your experience, but e-patient bloggers are using it as an opportunity to speak about the pain you never see. Feel free to share this press release in any way, or a quote from it–on your blog, Facebook, Twitter, Pin it, whatever! We appreciate […]

The Invisible Illness of Myeloproliferative Neoplasm


What does it feel like to be 18 and diagnosed with myeloproliferative neoplasm? Emily shares some of the frustrations we can all relate to. I have an MPN which is also known as myeloproliferative neoplasm. If we break down the words they give a pretty good working definition. Myeloproliferative Neoplasm: Myelo – From the Greek […]