Comments for Invisible Illness Awareness Week

Comment on Rebuilding After Illness by Diana Riordan

Diana Riordan — Fri, 30 Sep 2011 13:57:24 +0000

I have enjoyed the articles this week. I would like to find someone like me. Is there anyone who may have had a vaginal a&p repair which caused entrapment of pudential nerve.ThIs is painful and causes
me to not be able to sand without moving around,lying only on rt side and the pain has been controlled
to unbearable. I have been in this life for 11 years. I also have IC. My pain regime is braking thru both
PN & IC pain. I am at dianadeeds@aol.com. Thank you for reading.

Comment on Statistics by The Stuff People Say | The Practical Fibromite

The Stuff People Say | The Practical Fibromite — Mon, 26 Sep 2011 15:00:16 +0000

[...] as the folks behind Invisible Illness Awareness Week recently pointed out, “Nearly 1 in 2 Americans (133 million) has a chronic condition.” In other words, the lady at the pharmacy who encouraged you to try yoga for your fibromyalgia [...]

Comment on Am I Too Invisible For Accessible Seating? by Lucy L UK

Lucy L UK — Sun, 25 Sep 2011 12:31:55 +0000

Ignore the swine! (M.e./CFs for 12 years)

In Uk its not well known but you can register as disabled with social services and you get a little card u can wave. But I too do the cane thing.

As ive reached 55 I get challenged less…. its like its ok to be disabled if you are old only. (plus plainly im now “old” !).

Comment on 30 Things About My Invisible Illness You May Not Know by This is invisible illness week | sanitywithfibromyalgia

This is invisible illness week | sanitywithfibromyalgia — Fri, 23 Sep 2011 23:05:12 +0000

[...] found a website through a friend who is amazingly kind and compassionate. From there, I found this list that I wanted to [...]

Comment on “You Look So Good!” To Wear Make Up or Not? by Michelle

Michelle — Thu, 22 Sep 2011 13:58:31 +0000

I’m so glad you wrote this! I feel the same way about make-up. And as my grandmother said, a little red paint never hurt the side of an old barn.

I loved it when I heard an older lady in our church reply to the “you look so good comment.” She firmly said, “well I wish I looked worse and felt better.” Ha, I wish I had her spunk sometimes!

I am personally tired of people telling me that I need to stop spending money on hair and make-up and that I’m being vain. My personal beliefs about myself don’t change according to how I look, but when I look dowdy I just feel dowdy. It’s just the reality of it.

I’m glad to see that others feel the same way as me!

Comment on Reflections on Invisible Illness Awareness Week by Brenda

Brenda — Wed, 21 Sep 2011 17:53:40 +0000

Last week I found your site and I am really not sure how. God guides most of the thies in my life but I realize things happen in his time, not mine.
That being said I will tell you my “illnesses” (Diabetes, DDD, Osteoarthritis, Psoriatic Arthritis, HBP, Fibromyalgia, Chronic Fatigue, IBS, Chronic Migraines, Diverticulosis, Diabetic Gastro Paresis and a few more) are many, come without warning but “Do Not Own Me”.

I refuse to let them define me, confine me, or play even a sublime role in my life. My family does not understand any of this. I have accepted the fact that this is THEIR shortfall, not mine. I speak often to God, about just little things and walk in my small garden daily. My former job was as a software engineer, three years ago, and I now find myself designing which is very fulfilling. Music is also extremely healing for me. I try to dancewith my two doxies and one bichon daily. But most of all I practice HOPE. Thank you for having this site.

Comment on “30 Things About My Chronic Illness ” Meme by Lupus and National Invisible Chronic Illness Week September 12-18 « Lupus, the Adventure Between the Lines

Wed, 21 Sep 2011 16:53:14 +0000

[...] 30 Things About My Invisible Illness (Lupus) You May Not Know – Click this link to read other health blogger’s responses to these 30 invisible illness questions. [...]

Comment on “30 Things About My Chronic Illness ” Meme by Stoyan

Stoyan — Wed, 21 Sep 2011 16:00:27 +0000

Hi – We are a couple of days late, but we have not one, but three interviews filled out by the associate editors, including myself, that work for our organization: http://jdca2025.wordpress.com/2011/09/21/invisible-illness-week-30-questions-3-interviews-1-post/

Comment on “30 Things About My Chronic Illness ” Meme by 30 Things About My Chronic Illness « Diabetically Speaking

30 Things About My Chronic Illness « Diabetically Speaking — Tue, 20 Sep 2011 13:32:13 +0000

[...] to look back on these answers and see how and if they change with time. Are you curious? Do it! : Invisible Illness : CGM, coffee, DOC, insulin pump, invisible illness, [...]

Comment on 30 Things About My Invisible Illness You May Not Know by Kiss Me Deadly

Kiss Me Deadly — Mon, 19 Sep 2011 18:47:22 +0000

[...] Week (September 11-18th) , – 30 things about my invisible illness you might not know - but I slightly failed at timing on it. It might seem odd to put it here, but my main purpose is [...]