Up – Visit Some Fabulous Invisible Illness Week Blogs
September 6, 2010 by admin
Filed under Online Ways to Help, What to Do - How to Help
Many of you have been a large part of spreading the word about National Invisible Chronic Illness Awareness Week by blogging about it for us! Thank you!
And we hope that you have gained some encouragement and inspiration in reflecting on living with invisible illness as well as reading the blogs of others.
- So far this morning you can read over xx blog posts with people who
have registered through Bloggers Unite. To read them click here at Bloggers Unite for Invisible Illness Week and then scroll down. Ont he right hand side it will say “Participating Blogs.” About 171 bloggers are registered from 2009 and they still have wonderful posts to read. - Bunches of people have participated in our Meme, “30 Things About My Invisible Illness You May Not Know” here.
- If you read a post, be sure to leave a comment, even if just a short one. All of our bloggers love to hear from you and know that you stopped by!
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Who is Blogging About Invisible Illness Week? Here are Some Sites We Found!
September 4, 2010 by admin
Filed under Online Ways to Help
Who is blogging about Invisible Illness issues and our special week? Here are a few sites we’ve found!
Invisible Illness Week 2010
By James
Invisible Illness Week is almost here again! Scheduled for the 13th-19th of September 2010, this is the 9th year – and it’s less than a month away! This year, there will still be online seminars, though not as many as in past years. … Headache and Migraine News – http://headacheandmigrainenews.com/
SocialWrkr24/7 : Eyes Opened Wider: Invisible Illness Awarness Week
By SocialWrkr24/7
I don’t think I talk a lot about my “invisible illness” here on the blog – but I know I’ve mentioned it a handful of times. It is easy sometimes for me to brush it aside because I like to consider myself in “remission”. … SocialWrkr24/7 : Eyes Opened Wider – http://eyesopenedwider.blogspot.com/
Watching The Waters: National Invisible Chronic Illness Awareness …
By Corey
National Invisible Chronic Illness Awareness Week: Migraine. September 13-19 is National Invisible Chronic Illness Awareness Week. I learned about this on another blog, and will be participating several times in the coming weeks. … Watching The Waters – http://www.watchingthewaters.com/
Oh My Aches and Pains!: Good Reads for the Weekend: Lots of Linky …
By SelenaIt’s that time of year again, time to celebrate National Invisible Chronic Illness Awareness Week. This will be my second year participating in this virtual event which is happening September 13 through the 19th. … Oh My Aches and Pains! – http://www.ohmyachesandpains.info/
Sheryl Aronson: Invisible Illness Week
By noreply@blogger.com (Sheryl Aronson)
September 13-19 2010 has been designated ‘National Invisible Chronic Illness Awareness Week’. They have a simple and fun way of getting the word out about this awareness week, and make people feel good at the same time. … Sheryl Aronson – http://sherylaronson.blogspot.com/
CHRONICLYsILLy: Laws of A Lupie- CHRONICLYsILLy Rules to Live by
By CHRONICLYsILLy
Fact #1: Lupus is an autoimmune disease and is commonly referred to as an “Invisible Illness.” An invisible illness means that you cannot necessarily tell that the person is sick simply by looking at them, thus their illness seems to be … CHRONICLYsILLy – http://chroniclysilly.blogspot.com/
Journey with Chronic Illness BLOG » Invisible Illness Week Team …
By journeywithchronicillness
“Chronic Illness Tips: 263 Ways To Do More Than Just Get By” is by Invisible Illness Week founder, Lisa Copen and friends. Friends include chronic illness career specialist Rosalind Joffe, relationship expert and best-selling author Pam … Journey with Chronic Illness BLOG – http://journeywithchronicillness.podbean.com/
Invisible Illness Week — Post Its & How YOU Can Spread Cheer …
This is too good not to share, watch the video about how you can participate in a post-it note campaign on spreading encouragement and good cheer!
chronicbabeclub.ning.com/xn/detail/2082969:Topic:30192?…
Random (Mostly) Chronic Illness Stuff « A Young Wife’s Tale
Click on Invisible Illness Week to find out. This year’s Invisible Illness Week theme is “Each One Can Reach One.” It’s September 13-19 and I will of course …
youngwifestale.com/blog/chronicillness/…/comment-page-
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What Illness/Health Related Newsletters Do You Get?
September 3, 2010 by admin
Filed under Free Ways to Help, Online Ways to Help, What to Do - How to Help
Between all of us with a variety of chronic illnesses and symptoms, there are hundreds of thousands of newsletters and ezines out there on the internet. Since many of us live with different illnesses than our friends, we actually have quite a few editors we can reach in a short time.
I am letting the editors of the newsletters I receive know about Invisible Illness Awareness Week.
I am just going through the newsletter ezines I’ve received in the last few weeks and have hit “reply” or “contact” and sent them an email sort of like this (be sure to personalize yours and keep it short)
Keep in mind that the easier you can make it for them to tell others the more likely they will! So be sure to include the paragraph that has the description they can copy and paste.
Dear (name):
I recently received your newsletter and enjoyed it as always, especially the part about (what I liked here).
I wanted to call your attention to the date of September 13-19, 2010 which is National Invisible Chronic Illness Awareness Week.
September 13-19, 2010 is National Invisible Chronic Illness Awareness Week. This annual event, started in 2002 by Lisa Copen, features a variety of ways to get involved including a virtual conference September 13-17 online for free with speakers each morning 10:30 – 12 USA Pacific time.
There is a Meme “30 Things You May Not Know About My Invisible Illness”, you can sign up to blog for the cause, read guest bloggers’ posts, and get involved in the campaign on Facebook. There is even a free 80-page ebook when you sign up for email updates, with 263 tips!
With nearly 1 in 2 people living with a chronic condition, about 96% of those people are suffering silently with invisible illnesses. You can find more information at http://InvisibleIllnessWeek.com
Thank you so much for passing this along!
(Your name)
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Let Your Church Know About Invisible Illness Awareness Week
September 3, 2010 by admin
Filed under Free Ways to Help, What to Do - How to Help
Nearly 1 in 2 people in the US have a chronic condition. . . This includes people sitting in pews too! Invisible Illness Week is sponsored by Rest Ministries which is the largest Christian organization that specifically serves the chronically ill.
About 300 HopeKeepers groups exists around the USA and beyond too (find a HopeKeepers group near you or start a HopeKeepers group yourself!)
Pastors actually receive very little education in seminary that specifically discusses how to reach out to the chronically ill. They may learn to counsel a bit, pray, and pray for healing, but 6 weeks later-when the person has not been healed– it can be confusing as to what to say and do then.
Now is a great time to introduce Rest Ministries to your pastoral staff. There are some simple ways to increase awareness, by just emailing your pastor about the event. (A description is below that can be edited.)
If you need something to include on a resource table Beyond Casseroles bookmarks and Rest Ministries brochures are perfect give-aways. If your church will approve it, you may wish to get up and share a bit about chronic illness, Rest Ministries, or your testimony.
We are here to answer any questions! And if your pastor does not seem enthused. . . that’s okay. Don’t take it personally. If you are considering starting a HopeKeepers group or some kind of chronic illness ministry, “How to Start a Chronic Illness Pain Ministry” a new book by our founder, Lisa Copen, has some great tips regarding the emotions of it all, as well as the practical tips.
We recommend sending off a short email to your pastor and let him know that you will follow up with a phone call in a couple days. And then call him! If the pastor is very busy or oversees a huge church, you may wish to choose a pastoral staff member that oversees those who are ill, caregivers, the women’s ministry director, etc. Connect with the person who you believe will most connect with your passion of chronic illness ministry.
September 13-19, 2010 is National Invisible Chronic Illness Awareness Week. This annual event began in 2002 by Lisa Copen, founder of Rest Ministries, a national Christian organization that serves the chronically ill and an affiliate of Joni and Friends, the ministry of Joni Eareckson Tada. The week has a variety of ways to get involved including a virtual conference September 13-17 online for free with speakers each morning 10:30 – 12 USA Pacific time.
There is a Meme “30 Things You May Not Know About My Invisible Illness”, you can sign up to blog for the cause, read guest bloggers’ posts, and get involved in the campaign on Facebook. There is even a free 80-page ebook when you sign up for email updates, with 263 tips!
With nearly 1 in 2 people living with a chronic condition, about 96% of those people are suffering silently with invisible illnesses. See InvisibleIllnessWeek.com .
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Press Release – Invisible Illness Week Bloggers Driving Force Behind Awareness Campaign
September 1, 2010 by admin
Filed under In The News, Online Ways to Help, What to Do - How to Help* Feel free to share this on your blog, post it in your newsletter, whatever! Thanks for your help.
Invisible Illness Week Bloggers Driving Force Behind Awareness Campaign
San Diego, CA — (SBWIRE) — 08/31/2010 — National Invisible Chronic Illness Awareness Week, established in 2002, is September 13-19, 2010 and bloggers are a driving force behind the campaign’s success.
“The patient bloggers who participate by using their blogs as a platform to educate and increase awareness is the reason we are able to reach so many people on virtually no budget” shares Invisible Illness Week coordinator and founder, Lisa Copen. “Patient bloggers, as well as those who are health advocates, are some of the most active participants in social media and the causes they care about.”
InvisibleIllnessWeek.com features daily guest bloggers through September 19th that focus on a variety of topics that impact the lives of those who are chronically ill. These include being the spouse of one with illness, learning how to ask for help, and being a part of the patient community.
Anyone can participate by blogging about living with a chronic illness, especially the invisibility factor. Participants are encouraged to sign up with Bloggers Unite Invisible Illness Week’s event at http://ow.ly/2wOzV so that readers can easily find the blogs. Bloggers can also download the badge that declares their intent to blog about Invisible Illness Week or personal issues of living with an illness.
Many bloggers are also participating in the Invisible Illness Week Meme, “30 Things About My Invisible Illness You May Not Know.” This year’s theme, “Each One Can Reach One” encourages people to leave anonymous notes of encouragement, so bloggers are also posting photos of their notes on their blogs.
During Invisible Illness Week people can listen to seminars featuring panels of experts on a variety of topics via Blog Talk Radio. For more details visit InvisibleIllnessWeek.com . The event is sponsored by Rest Ministries, the largest Christian organization that specifically serves the chronically ill.
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Press Release – Invisible Illness Week Team Offers Free Ebook of 263 Tips
September 1, 2010 by admin
Filed under Free Ways to Help, What to Do - How to Help* Feel free to share this on your blog, post it in your newsletter, whatever! Thanks for your help.
Invisible Illness Week Team Offers Free Ebook of 263 Tips
20 Experts share their best tips about living with a chronic illness, from coping with illness and relationship tips to travel and homeschooling.
San Diego, CA — (SBWIRE) — 09/01/2010 — National Invisible Chronic Illness Awareness Week is September 13-19, 2010. A free 80-page ebook is now available for download to anyone who signs up for daily updates from the web site invisibleillnessweek.com .
“Chronic Illness Tips: 263 Ways To Do More Than Just Get By” is by Invisible Illness Week founder, Lisa Copen and friends. Friends include chronic illness career specialist Rosalind Joffe, relationship expert and best-selling author Pam Farrel, advocacy authority Jennifer Jaff, and illness advocate Jenni Prokopy.
Over 20 contributors share their best tips to live successfully with chronic illness on a variety of topic. “These experts are people who have the credentials,” says author Lisa Copen, “but more importantly, they have experienced illness themselves or health issues of someone close to them. Their tips come from the experience of living with the challenges illness gives us.” The chapters include coping tools, relationship issues, career, faith, and practical tips, from traveling with an illness to homeschooling. There are also many tips on how to encourage someone who lives with a chronic illness.
National Invisible Chronic Illness Awareness Week is an annual event that features a free virtual conference online 9/13-17 with speakers each morning 10:30 – 12 USA Pacific time. There are a variety of ways a person can get involved including blogging for the cause, completing the Meme “30 Things You May Not Know About My Invisible Illness”, or joining the campaign on Facebook.
With nearly 1 in 2 people living with a chronic condition, about 96% of those people are suffering silently with invisible illnesses.
For more information see http://InvisibleIllnessWeek.com .
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Are You Blogging for Invisible Illness Week?
August 30, 2010 by admin
Filed under Free Ways to Help, Online Ways to Help, What to Do - How to Help
Do you have a blog? You may have one and not even realize it! if you are part of a social network like the Rest Ministries Sunroom, you have a blog feature.
Hundreds of people are joining our efforts to blog about either Invisible Illness Week or their invisible illness! If you don’t have a blog, just try to post something about it somewhere and it will help us out a lot. (MySpace, Facebook, any social network you are a part of.)
Whenever you post something it helps us increase our exposure and it’s because of you this week is going to be a success!
A lot of our bloggers have joined Bloggers Unite Invisible Illness Week to let us know when and where and what topic they have blogged about. We encourage you to join (it’s free, quick and easy) so that your blog will get the most readers!
If you have posted your thought somewhere, be sure to let us know below too in the comments section! We’d love to come and visit your blog!
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How to Add Current and Future Invisible Illness Week Seminars to Your Web Site
August 26, 2010 by admin
Filed under Free Ways to Help, Online Ways to Help, What to Do - How to Help
It’s easy to add the widget of the Invisible Illness Week seminars from 2008, 2009 and . . . 2010 will automatically appears soon after they happen- to your own blog or web site.
Remember, this year, 2010, we will be doing just 1 seminar a day with guest panelists.
The “code” is below. Just copy it and paste it into a text widget. You can also find it at the web site. If the code below does not work there is specific code at Blog Talk Radio depending on what blogging software you use, etc.
Do you want the code to feature a specific show on your blog or web site?
After the show is done recording, go to the archived shows for Invisible Illness Week, and go to the show you want. In the top right area is the Blog Talk Radio logo box with the show. To get that show only click on the little tiny button that says “Share” beside the envelope.
A box will open with “embed code” – the basic embed code will work on most sites, or you can choose the logo for other software you may be using. (If you are on Facebook, go ahead and click that logo now too, to share it on Facebook)
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Facebook Brings Those With Chronic Illness Together for Invisible Illness Week
August 24, 2010 by admin
Filed under In The News, Online Ways to Help
One of the fastest growing ways for people to share the things they care about, including how health and illness issues impact their daily living, is through social media networks such as Facebook. Invisible Illness Week provides opportunities to connect with others to gain mutual support.
San Diego, CA — (SBWIRE) — 08/24/2010 –
National Invisible Chronic Illness Awareness Week is September 13-19, 2010 and so far thousands of participants are showing their support through the social network, Facebook, the second largest site on the internet according to Alexa.com.
Lisa Copen, founder of National Invisible Chronic Illness Awareness Week, which she established in 2002, says, “In 2009 our nonprofit organization included Facebook for the first time in our awareness campaign and the results had a significant impact we could not have imagined.”
Copen explains that when people who live with chronic invisible illness join an Invisible Illness Week group, a “Cause” or “Like” a page, it is a non-intrusive way of saying, “This is something that personally affects my life and that I care about.”
According to Copen, before social media, many people expressed that it was uncomfortable to email their friends or family illness-awareness related materials without creating feelings of being pushy or critical of their responses to illness. Now, by joining a cause on Facebook and inviting friends to join, it is much simpler to create awareness about daily life with invisible chronic pain.
It is particularly enlightening when someone with an illness invites friends to join the Invisible Illness Week Cause, and discovers how many friends are also suffering silently from conditions such as chronic migraines or fibromyalgia. “Sometimes those of us with illness forget that we may have loved ones who are also silently coping with invisible chronic conditions,” says Copen.
Approximately 7000 thousand people are a part of Invisible Illness Week’s presence on Facebook and Copen says she would love to see this number continue to grow. “We have some amazing articles, guest bloggers, and seminars that will help people know they are not alone in their pain and how to deal with the daily part of it even better.”
With nearly 1 in 2 Americans coping with a chronic condition, they are not alone, but the invisibility factor can make it feel that way.
To join one of Invisible Illness Week’s Facebook groups, causes or more see http://InvisibleIllnessOnFacebook.com.
Media Relations ContactLisa Copen
Coordinator
National Invisible Chronic Illness Awareness Week
888-751-7378http://www.invisibleillness.com
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Invisible Illness Week Online Virtual Conference Registration Now Open
August 22, 2010 by admin
Filed under Calendar of Events, Online Ways to Help
You don’t even have to get out of bed for this virtual conference!
Will you be attending at least one Invisible Illness Awareness Week Workshop?
Here are the details about the seminars of Invisible Illness Week:
- This year, 2010, we will have one seminar each day, 90 minutes long, with guest experts on panels
- M-F, September 13-17
- They will be held online, for free
- 10:30 AM Pacific time, USA
- Go to www.blogtalkradio.com/invisibleillnessconf at the time of the conference and the program will play out of your computer speakers
- If you miss it you can listen to it later, and within a few days they are also imported into itunes if you listen to podcasts on an ipod.
Here is a time zone converter.
Register below. It’s free. We basically just need your name and email, but if you’d like to share anything with us (including a web site address if you blog about your illness), we’d love to get to know you better. Leave any comments in the “bio” section if you’d like.
If the form does not work for some reason, just email us “yes, I am coming/listening in!”
http://invisibleillness.eventbrite.com
Are on Facebook?
If so, be sure to RSVP there too . Why? It helps us spread the word by popping up the little Facebook ad in the right hand column. Plus, we have a better idea of how many listeners to expect.
Remember, you can listen to all of the programs from your computer. They will be broadcast via Blog Talk Radio. If for some reason you can’t get it working, within moments of the program being complete, you can listen to it archived at Blog Talk Radio and later on itunes.Popularity: 6% [?]
