How to Add Current and Future Invisible Illness Week Seminars to Your Web Site
August 26, 2010 by admin
Filed under Free Ways to Help, Online Ways to Help, What's New, How to Help
It’s easy to add the widget of the Invisible Illness Week seminars from 2008, 2009 and . . . 2010 will automatically appears soon after they happen- to your own blog or web site.
Remember, this year, 2010, we will be doing just 1 seminar a day with guest panelists.
The “code” is below. Just copy it and paste it into a text widget. You can also find it at the web site. If the code below does not work there is specific code at Blog Talk Radio depending on what blogging software you use, etc.
Do you want the code to feature a specific show on your blog or web site?
After the show is done recording, go to the archived shows for Invisible Illness Week, and go to the show you want. In the top right area is the Blog Talk Radio logo box with the show. To get that show only click on the little tiny button that says “Share” beside the envelope.
A box will open with “embed code” – the basic embed code will work on most sites, or you can choose the logo for other software you may be using. (If you are on Facebook, go ahead and click that logo now too, to share it on Facebook)
Popularity: 2% [?]
Want to Add Our Seminars to Your Web Site?
September 8, 2009 by admin
Filed under Free Ways to Help, Online Ways to Help, What's New, How to Help
It’s easy to add the widget of the Invisible Illness Week seminar to your own blog or web site. The code is below. Just copy it and paste it into a text widget. You can also find it at the web site. If the code below does not work there is specific code at Blog Talk Radio depending on what blogging software you use, etc.
Do you want the code to feature a specific show on your blog or web site?
After the show is done recording, go to the archived shows for Invisible Illness Week, and go to the show you want. In the top right area is the Blog Talk Radio logo box with the show. To get that show only click on the little tiny button that says “Share” beside the envelope.
A box will open with “embed code” – the basic embed code will work on most sites, or you can choose the logo for other software you may be using. (If you are on Facebook, go ahead and click that logo now too, to share it on Facebook)
Popularity: 3% [?]
Chronically Ill Are Perfect Audience for Virtual Conference, September 14-18
September 7, 2009 by admin
Filed under Today's News, Announcements
CONTACT: Ms. Lisa Copen, founder & director
858-486-4685
www.invisibleillness.com
Chronically Ill Are Perfect Audience for Virtual Conference, September 14-18
Hard beds, traveling expenses, long walks to conference rooms, peers going overboard on the perfume, and extreme fatigue are predictably part of your average conference. For the chronically ill, however, these inconveniences oftentimes make attending an actual conference impossible. National Invisible Chronic Illness Awareness Week celebrates its seventh year, and with the power of social networking, 009’s “virtual” conference September 14-18, 2009 is sure to be a success.
“I can only leave the house once a week, twice if I am really lucky, so a weeklong conference is normally impossible for me,” says Juliann Krute who lives with Ehlers-Danlos Syndrome and many other illnesses. “Having a conference that I can attend—even if I am in too much pain to get out of bed—is fantastic!”
The conference will feature twenty live seminars via Blog Talk Radio that anyone around the globe can listen to LIVE or archived. The 2008 workshops have had over 12,000 listeners and are also available on iTunes.
Topics for 2009’s conference include:
• Applying and Winning Disability Assistance When You Are Chronically Ill
• Managing College with a Chronic Illness
• Find the Job You Desire and Can Do
• It’s OK to say NO: Building Healthy Boundaries
• Coping with Chronic Illness in Your Marriage
Guest speakers are some of the top chronic illness advocates online today including Jenni Prokopy of chronicababe.com; Rosalind Joffe of keepworkinggirlfriend.com; Maureen Pratt, author of Peace in the Storm, and Christine Miserandino of butyoudontlooksick.com. They are joined by.Kelly Rouba, former Ms. Wheelchair NJ 2007, and best-selling authors on marriage, Bill and Pam Farrel.
Invisible Illness Week was founded by and is sponsored by Rest Ministries, the largest Christian organization that serves the chronically ill.
Lisa Copen, 40, founder of Rest Ministries and creator behind National Invisible Chronic Illness Awareness Week says, “Regardless of where one’s spiritual ties are, there is an fundamental human desire to feel understood, to feel like those you love have some idea about what you are going through.” Copen, who is explored this in her book Why Can’t I Make People Understand: Discovering the Validation Those With Chronic Illness Seek and Why says, “One of the most difficult adjustments to illness is that you feel life is passing you by and no one around you even realizes it. We hope through our conference we can provide a place where people find the true source of being validated in their pain, how to live joyfully despite their illness, and of course, we want to increase awareness about how many suffer silently. Like our theme says, ‘A Little Help Gives a Lot of Hope.’ It really does.”
For more details about the free conference and other resources visit www.invisibleillnessweek.com
Popularity: 3% [?]
Invisible Illness Week Features Virtual Conference and Fresh Awareness
September 7, 2009 by admin
Filed under Today's News, Announcements
CONTACT: Ms. Lisa Copen, founder & director
858-486-4685
www.invisibleillness.com
Invisible Illness Week Features Virtual Conference and Fresh Awareness
Did you know that nearly 1 in 2 people in the USA have a chronic illness?* And despite assumptions that most illnesses are a mild inconvenience, if you ask those who live with a disease or chronic pain, you will find it drastically changes their lives. An invisible illness can be a disease that is nearly always unseen like chronic fatigue syndrome (CFIDS) or heart disease to one that progresses from invisible to visible, such as multiple sclerosis or rheumatoid arthritis. One thing is certain: those with chronic illness desire to connect with one another and live life to the fullest. . . but they may not be able to travel and sit through a typical conference.
This is where National Invisible Chronic Illness Awareness Week, September 14-20, 2009 excels, offering a 5-day virtual conference, where all speakers are available to listen to LIVE or later (all session are archived.) Monday through Friday, 9/14-9/18, anyone can log on to www.invisibleillnessweek.com and hear illness experts 4 times a day and even call in with their questions after the presentations. Last year’s shows have had over 12,000 listeners and are also available on iTunes.
There are a wide variety of topics including:
• Finding Health Insurance Coverage with a Pre-existing Condition
• Coping with Chronic Illness in Your Marriage
• Having Your Own Business When You Are Chronically Ill
• Simplifying Your Home and Housework
• Parenting When You are Chronically Ill – Chaos and Confessions
The theme this year is “A Little Help Gives a Lot of Hope.” Thousands of people have joined the cause through social media tools like blogging for the cause, a blog tour, a Facebook Cause and fan page, and Twittering about the event with the hashtag #iiwk09.
Lisa Copen, 40, is the founder of National Invisible Chronic Illness Awareness Week and has lived with rheumatoid arthritis and fibromyalgia for sixteen years since the age of 24.
“We all live with a variety of symptoms and the severity of the pain often changes or moves from one area to another on a daily basis,” says Copen. “But there is an underlying feeling that those we love the most don’t fully comprehend what we cope with minute to minute or the choices we make just to ‘have a life’. This can be more devastating to some than the actual physical pain.”
Copen, who was the recipient of the Audience Choice Our Bodies Ourselves Women’s Health Hero Award this spring says, “We hope to unite some of the millions of people who live with chronic pain and illness silently by offering an oasis of hope and understanding. Illness is never fun, but we hope to connect people to encourage one another, as well as host some fabulous workshops to help people live their best life possible.”
For details visit the web site, http://www.invisibleillnessweek.com
____________
*Source: Chronic Care in America: A 21st Century Challenge Revised
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- Can Those with an Invisible Illness Park in the Blue Spots Without Others Seeing Red? (invisibleillnessweek.com)
Popularity: 5% [?]
Visit Our Sponsors and Say Thanks
August 28, 2009 by admin
Filed under Today's News, Announcements
We have some wonderful sponsors who have joined us this year by making a donation and supporting our efforts.
Be sure to visit their web sites and say “thank you!”
Read more about these great organizations here.
- Rest Ministries
- HopeKeepers Magazine
- Chronic Babe
- A Husband, a Wife and an Illness
- Headache & Migraine News
- Delicious Health
Popularity: 2% [?]
Submit a Guest Blog
August 25, 2009 by admin
Filed under Today's News, Announcements
We’ve heard lots of you say “I am going to submit a guest blog post” but there are not a lot of submissions coming in and we’re afraid they are all going to come at once. We’d love to hear from you.
Submit your guest blog post today.
Popularity: 2% [?]
How YOU Can Make a Difference
May 5, 2009 by admin
Filed under What's New, How to Help
There are lots of ways to get involved in National Invisible Chronic Illness Awareness Week. In fact, just spreading the word that such a week exists seems to be therapeutic to some of us who are tired of hearing, “Are you still sick?”
We are always updating our web site under the category What to Do – How to Help, but if you are looking for a fast list, here are some things you can do that will all help us a lot! Most have links with more details if it’s not self-explanatory.
Bloggers or Writers
- Write a blog post for our web site as a guest blogger. It can be something fresh or something you have posted before.
- Submit a blog post you wrote in the past or just yesterday as a guest blogger here on our web site.
- Join Bloggers Unite to commit to blogging on your own blog about invisible illness.
- Don’t forget that on our front page we have a button, widgets, all kinds of things you can add to your blog.
Do You Twitter?
- Follow us @invisibleillwk
- Retweet our tweets to let more people know about II Week
- Use the hashtag #iiwk10 when tweeting
- Tweet out our 20 Things to Say to a Chronically Ill Person and 20 Things to NOT Say to a Chronically Ill Person
- Twitter 25 facts about illness in 25 days
- Get a Twibbon for your profile photo
Are You on Facebook?
- Join our cause & tell your friends and family The easy address to rememberis http://www.InvisibleIllnessOnFacebook.com
- Whatever you see on our web site that you like… scroll down to the share button and share it on Facebook. It’s easy and helps more than practically anything else you can do to help!
- Ask your friends to join the cause.
- Give a donation to the cause (We are aiming for $1900 to help us cover costs.)
Pray!
- We have a prayer group jut for the week – join us if you’d like.
Do You Have a Web Site?
- How to Put II Week Blog on Your Site
- Add our button to your site!
Buy Some Goodies to Help us Financially and Also Spread the Word
- We have some great II Week items to help you share about your passion for the cause.
Popularity: 10% [?]
GUEST BLOGGER: Why My Invisible Illness Makes Me a Label Reader
August 22, 2008 by admin
Filed under Guest Blogger Posts
This past June our daughter got married. It was a beautiful wedding and of course I cried. Now imagine planning a wedding for 200 guests that is predominantly gluten-free. What’s gluten-free you ask?
Three years ago our daughter was diagnosed with an invisible illness called Celiac Disease. One year later another 4 of us were also diagnosed. Today there are 7 of us in our family that have Celiac Disease. This plunged all of us into an unknown world of new foods and diets. We got a crash course in all things gluten-free.
Celiac is an auto-immune illness that prevents the absorption of wheat, rye, barley and sometimes oats. I had no idea that these offending grains could have such an impact and that they were in just about everything!
Imagine having to giving up your favorite bread, pasta, cookies, pastries, processed meats, salad dressings, ice-cream cones, cereal, soy sauce – well you get the point.
I used to wonder why people stood and read labels at the grocery store. “Just buy it already!” was the thought that popped into my head. Well… guess what? I’m now a label reader myself. Who knew that even bacon could have hidden glutens or soup in a can or even salad dressings of all things. But it’s true – we all read labels now.
Some people in our family get sicker than others if they’ve accidentally ingested gluten. Take for instance my oldest daughter; she gets violently sick for days. My brother on the other hand doesn’t really experience any symptoms so it’s much harder for him to stick to a regimented diet. Me, I just really gassy, bloated and the odd time have diarrhea – kind of like a flu.
So back to the wedding, what did we serve?
We managed to have an amazing stuffed chicken dinner complete with gravy and steamed veggies. The buns of course were not gluten-free but we managed to score some really great pavlova for dessert for our gluten-free members. Once the dance began we brought out a huge 32″ tower of fruit, some gluten-free and regular desserts. For a really cool alternative to serving all you can drink alcohol we served all you can drink espressos, lattes and cappuccinos.
It’s not easy eating gluten-free, especially when you travel. I have to bring a suit-case full of my own food just so I can be sure I have something to eat when we get to our destination. Airports can also be tricky. But like I have told my kids who are all celiac’s you can either manage your disease or let the disease manage you.
National Invisible Chronic Illness Awareness Week is fabulous! Someone you know, maybe even your best friend may have an invisible disease.
——————————-
Betsy Hiebert lives in Winnipeg, Manitoba. She is married to Bruce and has three kids and a dog. Her oldest two are married while the third just graduated grade 12. Her passions include: family, the cottage, traveling, gardening, golfing and volunteering.
Medical trauma, conditions and illnesses have had a way of creeping into Betsy’s life in various forms over the years. Her own health concerns taught her quickly how to talk to doctors and get the answers she needed. She has acted as a patient advocate on behalf of her father and more recently for one of her girls. Numerous trips to specialists and Toronto Western Hospital have created a good basis of medical knowledge and understanding.
Author of the Personal Healthcare Journal, available at www.mycarenecessities.com
Popularity: 1% [?]
PRODUCT REVIEWS: Awareness Items for Your Car
August 21, 2008 by admin
Filed under Today's News, Announcements
I was at a red light for over 2 minutes last night, and I looked at the license plate on the in front of me. It just had the car dealership’s name. This must be one of the BEST forms of free advertising taken advantage of out there, right? Because how many of us take the 2.2 minutes (I nearly timed myself last week) to put a new license plate frame on our car?
I was so excited to think about all the people stuck behind me yesterday who saw my new license plate frame!
One of the new lines in commercials these days is “What’s in your wallet?” We ask you… “What’s on your car?”
Here are some of our favorite items for our cars to increase awareness!
These license plates turned out GREAT! They are white with printed colors in black and then a thick glossy plastic – type coating. They should last a long time!
If you’re the bumper sticker kind of person, these are simple and too the point. And a nice touch for when someone wonders why you are parking in a disabled spot but “look just fine.”
Also a nice bumper sticker from one of our past years, but it doesn’t have a date so is still just dandy!
Would you rather have a static cling on the back of your car? This one is cute enough with a roller coaster logo to get your viewpoint (“help a friend hold on”) about living with invisible illness across.
Just in case you want a bit of inspiration as you’re driving down the road, check out these scripture cards you stick in your dashboard and they reflect up onto the window. We love them!
Popularity: 5% [?]
6 Ways to Make a Difference for Invisible Illness Week
August 20, 2008 by admin
Filed under Online Ways to Help
Here are some fast ways that you can make a difference today!
- Change your signature file for the next month in your email program
- Post well-written press releases [here is an example] about your story on some of the free press release web sites and send them to your local paper too! Some freebie sites include: Express Press Release; PR Log; EWorld Wire; PR Insider; or for $10 Press Release 1-888 is a good one
- Contact the communities you’re involved in online about invisible illness week
- Pass out brochures at your local doctors office waiting room, therapy office, support group, pool, church, everywhere!
- Put up your “I’m blogging for invisible this week” badge on your web site
- Set up a resource table with your brochures, bracelets, etc. at your local support group meeting, church ministry fair etc.
Popularity: 1% [?]
